I came across this post in the City of Heroes Official Forums. I think it says it all.
| Happy Birthday to RoseVortex – Organ Donors Wanted
#12044117 – 09/25/08 09:29 AM
Howdy Liberty-folks (Libertines?).
I wanted to wish Happy Birthday to RoseVortex (my wife) and make a request.
<Turns down the Humor Circuit to level 1>
She’s 34 today. I know you aren’t supposed to share a woman’s age, but it’s a big deal for her. She’s actually in the hospital (“Club Med”) this week getting an antibiotic “tune up”. It looks like she’ll be there right through her birthday (I’m posting this a few days early). In fact, it looks like her meds might be doing something odd to her haircolor……
For those who missed my last long and drawn out post (for *my* birthday) in April, my wife has a genetic disorder called Cystic Fibrosis (CF) for short. Don’t know what that is? http://en.wikipedia.org/wiki/Cystic_fibrosis has the details. In short, your body can’t break down the mucus it produces – as a result CF patients develop persistant (and very nasty) lung infections and have digestive and other issues. Once upon a time, this was a childhood disease and most patients didn’t survive out of their teens. As the years have gone by, the median life expectancy for CF patients has risen almost every year (I believe its up to 36 now).
RoseVortex has been chasing that revised life expectency number for a while now, along the way she got married (to this weird guy), had 2 kids, graduated college, and taught high school English for a few years. Along the way through the last 14 years got sort of geeky/gamergrrl-y (which still makes me wonder if that means I have been a “good” influence or a “bad” influence…..). She started playing City of Heroes with me in January 2006, and we are pretty much only on Liberty server, where we hang out on the SisterhoodFriends global channel (which has a bunch of folks from all over the place). Rose has 3 lvl 50 toons (which makes me look like a slacker since I only have the 1….I think I might have alt-itis). She’s even managed to get the Master of Statesman TF badge on her empath (which seemed like an impossible task with Yank Shillelagh the Suicidal Scrapper along…thanks for the stress Yank ). We play mostly blueside, but both of us have a late 30′s baddie toon as well. She cheats and plays while I am at work…..
RoseV has been on the lung transplant list for about a year and a half. As of the last few days we are now up to #2 on the list at our transplant center. She has to have a double lung transplant because otherwise a “sick” lung would infect the “clean” one….otherwise I’d give her a lung in a heartbeat. Over the last 2 years we have sold our house and moved in with her Mom until after the transplant comes “someday”. At this point she’s on oxygen 24×7, so we don’t get out much. She is one of the toughest people I have ever met – she walked around with an undiagnosed pneumothorax (a collapsed lung) for a week last year saying she was “uncomfortable” – the living definition of the Willpower powerset I guess. Along the way we have kept our sense of humor (well, its gotten a bit on the dark side, but we are still laughing). Of course, if I make her laugh too hard I might pop another lung….its a delicate balancing act…
My birthday wish for Rose is not something I can buy. The Lung Store doesn’t seem to have a branch in our area.
The transplant lungs will come from someone we don’t even know. I don’t know that we will get a chance to say thank you to anyone.
My birthday request/wish for RoseVortex for all of you is this:
-If you don’t have any religious or moral objections (and I understand if you do) please go out and register as an organ donor. If you are in the US, go to http://www.organdonor.gov/donor/index.htm and find out how to register in your state (every state does it differently). According to http://www.unos.org/data/default.asp?displayType=usData there are 99,000 people on the waiting lists in the US right now. If you are outside the US, it looks like every country has their own way of handling registration, you’ll have to Google it.
-If you choose to register, make sure you discuss it with your family and they understand your wishes, because if the time comes, you won’t be around to tell them.
If you are already registered, thank you for your “birthday present” to Rose and to everyone else on the waiting lists. I will probably never get to say Thank You to whoever helps give Rose more life, so I will have to make it a general THANK YOU to everyone who has registered as a donor. It really will make a difference for somebody.
<Humor Circuit back to normal>
I don’t want any of you redside folks to get the idea of running down to the Facemaker and picking up a set of lungs. The doctors here seem to be pretty picky about knowing where the organs came from…..
Thanks for taking the time to read my ramblings, and please wish RoseVortex a Happy Birthday. Hopefully she’ll be back playing in a week or so.
I love you Rose.
Thanks for reading this far My posts tend to get kinda long…..
@Kalkin – Liberty
ArcherBot – lvl50 TA/A